February 9, 2011


Pills

She takes these pills,
And she moves along
She takes these pills,
And its better

It really doesn’t matter to me
To live in your life and your own routine
A product from ecology it seems
She looks at him like he’s a machine
And lives with him ‘cause he’s a bill machine
That brings it closer where she swears it needs

So she takes the pills
And she moves along
She takes the pills
And its better
He pays the bills
And he moves along
She takes the pills
And its better

It really doesn’t matter to me
When you’re living your life in your own medicated dream
How bad could sobriety really be?
I know you couldn’t even recognize me
I wonder if she knows that her own family
Is waiting and praying in the hopes that she would leave

She nods her head as she moves along
She takes the pills and its better
She lies in bed ‘till noons along
She takes these pills and its better
She takes these pills as she moves along
She takes these pills and its better
He nods his head and they move along
She takes these pills ‘cause its better

Well it doesn’t really matter to me
You know it really doesn’t matter to me
It really doesn’t matter to me

Now he takes these pills and he moves along
He takes these pills and its better
He bobs his head as he moves along
He takes these pills and its better
Now we take these pills and we move along
We take these pills and its better
We shake our hands as we move along
We take these pills cause its better

You know it really doesn’t matter to me
You know it really doesn’t matter to me
It really doesn’t matter to me
‘Cause it’s better

Lyrics by Hurt

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This is one chronically awesome kitty

fibrofighter:

mel-animal:

6277:

Ever have a day where it just takes up all your energy to even blink?

that face

*worships tiny blinking kitty*

This is one chronically awesome kitty

fibrofighter:

mel-animal:

6277:

Ever have a day where it just takes up all your energy to even blink?

that face

*worships tiny blinking kitty*

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Chronically awesome

February 11, 2011


How to define Chronic Illness

Defining #ChronicIllness: could be pain, auto immune, mental illness, could be IBS or Crohns. Arthritis and injury. The list goes on. In fact I hesitate to even start this list. When you make a list you will always leave something out. Chronic Illness is a sadly inclusive club.

A person with #chronicillness is one that suffers daily with something awful and uncomfortable. Why spend time comparing, spend time loving.

Look around you, look at your friends and your family. Look at your Tumblr friends and your Twitter friends. Look on Facebook and at your office. How many Chronically Awesome people do you know? Is this really a club you want to be alone in? Me? I want to get hugs from as many people who “get it” as I can.

I don’t wish this crap on anyone, but if you can relate, I want to hear your story. If you need someone to talk to, I want you to know that there is a giant community of other awesome people out there ready to open our hearts to you.

The only rules are, to treat each other with respect, and to be kind. Remember that we are all suffering.

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What’s your Chronically Awesome Illness

Add your illness even if it’s a repeat and reblog.

Lupus
Bipolar
Peripheral Neuropathy
OCD
Fibromyalgia

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Chronically Awesome chronic illness

February 12, 2011


"Without fear and illness, I could never have accomplished all I have." -Edvard Munch

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I wish I could move my arms today. I wish my back wasn’t on fire.
Oh, that my thighs and knees and shins and feet weren’t screaming.
Did I mention the migraine?
On another note, this bean and cheese burrito is blowing my mind socks.

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Lupus fibromyalgia migraine Chronically awesome blog what the blog personal

February 15, 2011


Home sick. Washed my face n hands before I come I did.
Pretty sure Audrey would shower and comb her hair even when she felt like garbage, so I do too.

Home sick. Washed my face n hands before I come I did. Pretty sure Audrey would shower and comb her hair even when she felt like garbage, so I do too.

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February 23, 2011


Sexual Health and Chronic Pain

I remember the first time I heard the line “not tonight, I have a headache”. I was too young to have any idea what it meant. Everyone around me laughed, so I laughed too. It wasn’t until much later, when I understood what it meant, that it made even less sense to me. I wished from that moment on I could go back to not knowing what that lame line meant.

I have never, in my life understood making excuses for not having sex. If you don’t want to have sex, simply say “Hey, I don’t really feel like doing it tonight, I’ll give you a have a rain check.” If you are not in a place in your relationship where you can be that open with your partner, I can tell you right now that using pain as an excuse is really not the way to go, trust me. Pain is not your excuse to skip sex. Rather, pain is your reason to have more sex.

Before you write me off as totally nuts, give me a few paragraphs to explain myself.

There is no way I am saying that regardless of your level of pain you should be always saying “yes” to sex. I am not saying that you should ignore your discomfort and say “yes” to sex even if you aren’t feeling up to it. What I am telling you is that there are many ways that sex and intimacy can help you to overcome pain.

I am not a doctor. I don’t even play one on TV or the Internet. I am a person. I am a woman. I have chronic pain, I am married, and I like to have sex. So I speak on those simple levels of authority. I know what I know based on my experience and on some research. This is research you can do too, if you want to.

Let’s start with the silly headache story. Research at Columbia University (and bedrooms all over the world) shows that orgasm releases endorphins which in turn can relieve and often remove the offending headache.

Obviously, I have made a simple statement with far reaching implications. I can take the endorphin releasing orgasm now and apply it to so many different aches and pains across the body. Tiny steps in logic tell us we have some great medicine here in the endorphin. We even know where to get it.

That does not solve another problem: when it hurts enough that you don’t even want to go there.

Ya, I hear you.

You don’t have to start with the full fireworks show, you can start with sparklers. This is especially true if your chronic pain has kept you from intimacy for an extended period. It might be awkward and painful to try it all at once. Many couples that experience chronic pain or any chronic illness in the relationship have grown apart on this level and will have to work to achieve intimacy again. It’s almost like you are a new couple again. Don’t expect that you are going to pick up where you left off before the pain started.

You can start slowly and still get some benefit from our friend the happy endorphin. This is not a “go big or go home” situation. What are you most physically and emotionally comfortable with?

Here are some simple suggestions:

Just One Part: Hands, Feet, Neck, Shoulders. Pick a part you would like touched, or rubbed. Use a lotion or oil you both like the smell and feel of and take turns massaging just that part for each other. There is no pressure to go any further than just that part.

Hair Brushing: I don’t know about you but I love having my hair brushed. 5 minutes of having my hair brushed can be both intimate and calming. Later if you want to combine that with some other things… well ya…

Bathing: Showing or taking a bath together can be fantastic. If this is still too intimate after an extended period of no intimacy, perhaps even some time in the hot tub?

Talking About It: There is a reason that “sexting” and phone sex are so popular. Words are very powerful. Why not create a comfortable environment for your words. Sit together, lay together in the dark and hold hands, or sit in different rooms and text, whatever works for you: now use your words. You never know where it will lead, wherever it goes: let it.

The goal here is also, in part, distraction. Intimacy and closeness with your partner is an excellent distraction from this lousy chronic pain. You are able to work with your body in a way that is pleasurable instead of painful.

I started this project with the singular goal of compiling other articles. Then I wanted to write an introduction for those links, then this happened. My goodness. So, here are some articles by people that are probably a lot smarter and better qualified than I am on this subject:

How People In Chronic Pain Can Revive Their Sex Lives

Sexuality and Chronic Pain: Mayo Clinic

Chronic Pain and Sex: A couple’s fibromyalgia story

Wired.Com: When Sex Is A Pain

What to do when Pain Meds Dull Your Sex Life

7 Reasons Sex Does A Body Good

Thank you @cinnamaldehyde and @beyondempathy for your inspiration

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March 4, 2011


March 5, 2011


March 10, 2011


Hot tub time for the Lupus crowd. Last one in is a rotten egg!

Hot tub time for the Lupus crowd. Last one in is a rotten egg!

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March 11, 2011






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